THIS IS MICHELLE

​This is the story of Michelle Hall. She was born with a severe form of EB. Now, for the first time, she has hope that she and thousands of others, will see a cure.

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Rowan's Story

Rowan is a 3-year-old girl living with Recessive Dystrophic Epidermolysis Bullosa. EBRP has given Rowan's parents hope for a cure for their daughter and all others living with this devastating disorder.

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CAUSE THE WAVE

Eddie Vedder of Pearl Jam and EBRP Board Member discusses Epidermolysis Bullosa, a devastating skin condition, along with Dr. Jakub Tolar, a leading researcher, and brave kids and grownups who battle EB every day.

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Mikey's world

This is a "day in the life" of Michael Fullmer, who is living with EB, a rare and life-threatening skin disorder that affects children from birth. The good news is that a cure is within reach. 

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Time is Life

See how venture philanthropy increases the possibility for finding a cure to #healEB.