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Life with EB

Share Your Story
Click the photos below to read each EB story.
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Clara: Simplex

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Salim: Dystrophic

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Archer: Dystrophic

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brady: Dystrophic

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Eli: Junctional

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Elodie: Dystrophic

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Nicky: Dystrophic

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Nisha: Simplex

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Deanna: Dystrophic

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Teodora: Dystrophic

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Priya​: DYSTROpHIC

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Zack: Dystrophic

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Ryan: Junctional

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Dolores: Junctional

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Rowan: Dystrophic

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MIKEY: Dystrophic

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DARREN: Dystrophic

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JACKSOn: Dystrophic

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Shane: Dystrophic

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JENNIFER: Dystrophic 

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EliJAH: Dystrophic

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Anna: Simplex

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Shirvani: Dystrophic

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Abdullah: DYSTROPHIC

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NATASA: DYSTROPHIC

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bowen: simplex

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Shardai: JUNCTIONAL

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CAROLINE GEORGIA: JUNCTIONAL

TAYMA SALIM: DYSTROPHIC

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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate