Sign up for our newsletter
Donate
Epidermolysis Bullosa
What is EB?
Family & Caregiver Resources
Life with EB
Research
Research Priorities
Applying for a Grant
Funded Projects
Special Initiatives
Clinical Trials
Glossary of Terms
Scientific Advisory Board
Get Involved
Donate
EBRP Events
>
ACTion for Jackson
All in for a Cure
Night of Discovery
Endurance Events
Community Led Events
News
Press
Media
Social Profile
About Us
Our Mission
Our History
Venture Philanthropy
Our Impact
Board of Directors
Contact Us
Community Council
About
Patient Care
Clinical Trials
Applying for Grants
Life with EB
Click on the images below to read each person's story about life with EB.
Share Your Story
Elodie: Dystrophic
Rowan: Dystrophic
MIKEY: Dystrophic
JENNIFER: Dystrophic
brady: Dystrophic
Ryan: Junctional
DOLORES: JUNCTIONAL
Zack: Dystrophic
Anna: Simplex
JACKSOn: Dystrophic
Shane: D
ystrophic
Epidermolysis Bullosa
What is EB?
Family & Caregiver Resources
Life with EB
Research
Research Priorities
Applying for a Grant
Funded Projects
Special Initiatives
Clinical Trials
Glossary of Terms
Scientific Advisory Board
Get Involved
Donate
EBRP Events
>
ACTion for Jackson
All in for a Cure
Night of Discovery
Endurance Events
Community Led Events
News
Press
Media
Social Profile
About Us
Our Mission
Our History
Venture Philanthropy
Our Impact
Board of Directors
Contact Us
Community Council
About
Patient Care
Clinical Trials
Applying for Grants
✕
