EB Research Partnership
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Life with EB

Click on the images below to read each person's EB story. 
Share Your Story
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Elodie: Dystrophic

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Rowan: Dystrophic

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MIKEY: Dystrophic

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Shane: Dystrophic

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brady: Dystrophic

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Ryan: Junctional

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DOLORES​: JUNCTIONAL

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Zack: Dystrophic

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JENNIFER: Dystrophic 

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Anna: Simplex

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Teodora: Dystrophic

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JACKSOn: Dystrophic

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Eli: Dystrophic


Eb research Partnership

132 East 43rd St, Suite 432
New York, NY 10017
info@ebresearch.org
646-844-0902
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Press
  • Epidermolysis Bullosa
    • What is EB?
    • Resources
    • Life with EB
  • Research
    • Research Priorities
    • Applying for a Grant
    • Funded Projects
    • Special Initiatives
    • Clinical Trials
    • Glossary of Terms
    • Scientific Advisory Board
  • Get Involved
    • Donate
    • Sponsor
    • EBRP Events >
      • ACTion for Jackson
      • All in for a Cure
      • Night of Discovery
    • Endurance Events
    • Community Led Events
  • News
    • Press
    • Media
    • Social Profile
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Board of Directors
    • Contact Us
  • Community Council
    • About
    • Patient Care
    • Clinical Trials
    • For Researchers