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CAUSE THE WAVE

Jill and Eddie Vedder's Commitment to #HealEB
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Rocking the status quo

Meet Jill and Eddie Vedder.

​Jill and Eddie knew they had to take action when a childhood friend’s son was born with EB. They combined their commitment to catalyzing global change with Eddie’s powerful platform of being the singer-songwriter for one of the world’s biggest rock bands: Pearl Jam. Together, they are not only co-founders of EBRP but also leading ambassadors sharing the mission of curing EB with the world.
“It’s about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical.”

Eddie Vedder, EBRP Co-Founder

Cause the wave with the vedders

Donate below in honor of Jill and Eddie Vedder to help #CauseTheWave to discover treatments and cures for Epidermolysis Bullosa.
DONATE
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Create an Event
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate