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Community Council:
​Clinical Trials

Clinical trials update

October 2019

This webinar includes presentations on current clinical trials from:
​
Dr. Emily Gorrell and Dr. Albert Chiou, Stanford
Dr. Mark Sumeray, Amryt Pharma
Dr. Amy Paller, Lenus Therapeutics
John Maslowski, Fibrocell Science
Dr. Peter Marinkovich, Stanford

Castle Creek 

August 2017

Delivers for EBS clinical trial discussion with Dr. Anna Bruckner MD,  Dr. Jemma Mellerio BSC MD FRCP, Dr. Amy Paller MD. Please direct all questions to Dr. Greg Licholai MD at: 
​[email protected]

Castle Creek Community Council from EB Research Partnership on Vimeo.


fibrocell 

October 2016

​FCX-007 Program discussion with John Maslowski, Senior Vice President of Scientific Affairs

Fibrocell Community Council from EB Research Partnership on Vimeo.


essence study

October 2016

​​
Efficacy and Safety of SD-101 Cream in Patient with EB with John C. Browning, Chief of Dermatology at Children’s Hospital of San Antonio

Essence Study Community Council from EB Research Partnership on Vimeo.


stanford

October 2016

Gene Therapy Clinical Trial for RDEB Patients at the Lucile Packard Children’s Hospital at Stanford University with Dr. Jean Tang

Stanford Community Council from EB Research Partnership on Vimeo.


usc

October 2016

Gentamicin Therapy for RDEB Patients with Nonsense Mutations with David T. Woodley MD & Mei Chen PhD

USC Community Council from EB Research Partnership on Vimeo.


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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate