EB Research Partnership
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Cure curator for rare disease

Starting in Epidermolysis Bullosa (EB) with aspiration to expand to all rare disease, the Cure Curator is a first-of-its-kind data platform uniting patients and investigators to accelerate the path to treatments and cures.

Learn more

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Global Genes covers our model from Venture Philanthopy, to strategic partnerships, and our vision for a first-of-its kind data platform to advance treatments and cures for EB in this case study.
Read Case Study
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EBRP CEO Michael Hund and Ryan Jancaitis of AWS Envision Engineering joined host Sara Armstrong on the AWS Innovation Ambassadors podcast to discuss our innovative model to heal EB.
listen to podcast

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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate