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DATA PLATFORM

Thank you for expressing interest in EBRP's Data Platform. This initiative aims to  bring the EB community - patients, caregivers, and researchers - closer together to accelerate the path to treatments and cures for EB. Fill out the form below to receive updates on EBRP's Data Platform and how you can be involved. Let's #healEB!

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Learn more

Watch EBRP Co-Founder Jill Vedder and CEO Michael Hund's Closing Keynote at AWS's Imagine Conference to learn more about our vision for this Data Platform and its significance in our mission to #healEB. 

EB Research Partnership

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info@ebresearch.org
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COPYRIGHT @2021 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials
    • Community Council
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • Events
    • Shop
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
      • Founders
  • Donate