Thank you for expressing interest in EBRP's Data Platform. This initiative aims to bring the EB community - patients, caregivers, and researchers - closer together to accelerate the path to treatments and cures for EB. Fill out the form below to receive updates on EBRP's Data Platform and how you can be involved. Let's #healEB!
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Learn moreWatch EBRP Co-Founder Jill Vedder and CEO Michael Hund's Closing Keynote at AWS's Imagine Conference to learn more about our vision for this Data Platform and its significance in our mission to #healEB.
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