ELi: junctionalEli Meyer is 6 years old. He's just a regular kid; he enjoys arts and crafts and jumping on his trampoline. Eli also has Junctional Epidermolysis Bullosa.
Eli's family adopted him from China when he was 4 and they live in California. His older sister Lily didn't like the stares that Eli received from strangers when they were out and about. The siblings decided to try to make a change and started the #ComeSayHi movement. Instead of staring, Eli and Lily encourage people to simply "Come Say Hi" to Eli to learn about EB and how they can help. They believe that when people understand each other and accept others' differences, the world will be a better place. Eli and Lily's message gained national attention after being broadcast on the WE Day special that aired on ABC on August 9, 2019. EBRP Co-Founder Eddie Vedder surprised Eli on screen with a new song written just for him and thanked the siblings for their noble efforts. Watch the video to learn more! |
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#COmesayhi with us!
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