Natasa: Dystrophic
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I'm Natasa, I'm 21 years old and I'm from Serbia. I do graphic and brand design, I love my job, I love books, coffee, art...And yes, I have EB.
I was diagnosed with Epidermolysis Bullosa immediately at birth. In my case, it presents in a recessive, dystrophic form, which is one of the most difficult subtypes of this disease because it has the most pronounced symptoms that leave serious and permanent consequences. As a result of this diagnosis, I need help with basic daily activities and needs, and I have open wounds, blisters, bandages, blood, pain, itching, deformities, difficulty swallowing and walking, and numerous limitations and obstacles in my everyday life. Luckily, my family are my biggest supporters and their support means everything. Despite the daily battle to try and stop it, my EB is progressing - it is not standing still. For 21 years, it has given me many challenges. These are frequent hospitalizations, infections, numerous hand operations, narrowing of the esophagus, transfusions, therapies, medical examinations, check-ups...And then skin cancer, the most serious complication of this disease. I have operated on it 2 times so far, but this fight is still going on. It is "just" another one of the many palette wounds I have. It is there to remind me to appreciate every new moment in this earthly life, with hope and faith in a better and more beautiful one. I mentioned the palette because I love art. My affection and love for drawing is connected to the earliest period of my childhood, when I created various icons, pictures and illustrations. Over time and as I grew up, I began to express my emotions, thoughts and feelings through drawing, which connected me even more deeply to this hobby, which has now, through the profession of graphic and brand design, become my job. In addition to the affection, talent and love for this job, I also have a diploma that I obtained during my high school education, which was very challenging but also a very inspiring moment. After graduation, I opened a business profile on Instagram, where I help entrepreneurs develop their business by providing services and sharing educational and inspiring content in the field of graphic and brand design. For me, graphic design is not just a job, but a place where creativity, with will, effort and work, overcomes barriers, shortcomings and limitations. When I'm designing logos, branding, advertisements, and many other graphic products, I face the same challenge every day - to create something different, innovative, unique. It is a very inspiring and motivating challenge for me because it reminds me every day that being different is not a flaw, and that each of us is created by the careful hand of an artist who created us according to his plan. In order for a caterpillar to become a butterfly, it must accept and survive many pains. But after that she will certainly take off much stronger, more powerful. And become a butterfly. -Natasha |
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