About the Event
Join us in pursuit of a cure for Patterson and all others who live with EB. This year, Pursuit for Patterson will be a two-part affair, with a golf event taking place on October 13, 2018 at Druids Glen Golf Course in Covington, WA and a Silent Auction in November (details to come!). Donations can be made below. All proceeds benefit EB Research Partnership.
Peter and I have found that having a 3 year old has been our wildest adventure yet. Patterson has a very comical personality and tends to be the life of the party. He enjoys everything outdoors! He loves walks, riding on his bike with Grandma, playing in dirt with sticks and rocks and going to our neighborhood park. His favorite thing in the world is his elephant, Ellie. You will rarely see him without it.
Patterson’s diagnosis of Epidermolysis Bullosa (EB) has been a learning process for us every day. He is growing quickly, as children do, and with that always comes new challenges. Most days Patterson’s EB slows us down more so than him. He is learning that bandage changes and cleaning wounds are a part of the daily routine. We will continue to take each day as it comes and raise Patterson to have as much confidence as a child without a disability. He brings far more joy to us than we could ever find words for and are better for him.
EB Research Partnership (EBRP) is so important to us for many different reasons. EBRP is an advocate for our child and truly gives us hope that one day, in Patterson’s lifetime, we will see a cure and relief from this devastating disease. EBRP’s mission in finding a cure through research inspires our family to be more involved and do our part.
- Annie, Patterson's Mom