Leave a legacy to help heal EB and support our mission to show the world how cures are found.
WHAT IS PLANNED Giving?
Planned giving is the process of donating planned gifts. A planned gift is a contribution that is arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away.
HOW TO GIVE
EBRP would be happy to provide you with further information or help you prepare the right questions to ask your financial advisor or will attorney to determine what type of planned gift may be right for you. We can also work together to provide you with specific language to include in your estate planning. Email firstname.lastname@example.org or call 646-844-0902 to get in contact with an EBRP team member.
have you left ebrp in your estate plans?
Please be sure to let us know so that we can send you a special thank you and better plan for our future. Kindly email email@example.com or call 646-844-0902.
about eb research partnership
Our Mission We're the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a group of rare and life-threatening genetic disorders that affect the body's largest organ - the skin. Children with EB lack proteins that bind the skin's two layers together, causing it to blister and shear off from even the slightest friction. To date, we've funded 100+ research projects, transforming the clinical landscape from just 2 clinical trials in EB when we were founded to 40 today.
Our Model At EBRP, we pride ourselves on innovating to accelerate the path to a cure for EB. Through our Venture Philanthropy model, we negotiate a financial interest in the research we fund. If that research leads to a commercially successful therapy, we use our returns to fund additional EB research. In other words, your donation has the potential to grow to multiples of its original value.
Why Planned Giving? Through planned gifts, donors can leave a legacy behind after they pass. That’s why planned giving programs are often called legacy programs or legacy societies. Whether leaving a bequest as a tribute to a family member or creating a legacy for themselves, donors benefit from planned gifts because they can make a lasting impact. Planned gifts also offer a few tax benefits depending on the type of gift. Speak to your attorney or will advisor to learn more.