EB Research Partnership
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ABOUT EB Research Partnership

​Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. EBRP utilizes an innovative venture philanthropy business model. When making a grant to a research project, we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful and use the return on investment to fund additional EB research until a cure is found. 

EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming.

By partnering with us, you will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
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EB Research Partnership

132 East 43rd St, Suite 432
New York, NY 10017
info@ebresearch.org
646-844-0902
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  • Epidermolysis Bullosa
    • What is EB?
    • Resources
    • Life with EB
  • Research
    • Funded Projects
    • Consortia
    • Clinical Trials
    • Scientific Advisory Board
    • Apply for a Grant
    • Community Council
  • Get Involved
    • Donate
    • Venture Into Cures
    • Sponsor
    • EBRP Events >
      • ACTion for Jackson
      • All in for a Cure
    • Endurance Events
    • Community Led Events
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
  • Donate