scientific advisory board
The EBRP Scientific Advisory Board includes:
Anne Lucky, M.D., Scientific Advisory Board Chair, is the medical director at the Epidermolysis Bullosa Center at Cincinnati Children’s Hospital in Cincinnati, Ohio and has a private practice. Dr. Lucky provides interdisciplinary care for over 300 EB patients and consults both nationally and internationally on cases involving EB. She helped develop the EBSEQ Next Generation genetic screening test for EB in July of 2014 at Cincinnati Children’s Hospital. She attended medical school and completed her residency at Yale University School of Medicine.
Greg Barsh, M.D., Ph.D. runs the Barsh Lab at the Hudson Alpha Institute for Biotechnology in Huntsville, AL. The Barsh lab studies the genetic mechanisms of morphologic variation, and looks for new insights on basic biology and human disease. He has a M.D. and Ph.D. in pathology from the University of Washington, Seattle.
Suephy Chen M.D., M.S. is the Chair of the Department of Dermatology at Duke University School of Medicine. She attended medical school at Johns Hopkins University School of Medicine.
Christopher Sloey is a Senior Scientist at Amgen Inc. working in the department of Drug Product Technologies. He specializes in the development of protein therapeutics. He has been published multiple times and has several patents related to pharmaceutical formulations. He has a degree in Biochemistry from the University of California Los Angeles.
Amy Paller, M.D. is a Department of Dermatology Chair as well as a Director at the Northwestern University Skin Disease Research Center (SDRC) and the Director of Pediatric Dermatology Clinical Research and has led over 80 clinical trials. She is a member of the EBCRC and treats an estimated 75+ EB patients per year. She attended Medical School at Stanford University and completed her residency at Northwestern University.
Alain Hovnanian, M.D., Ph.D. is a Professor of Medical Genetics and Director of an INSERM Department at Necker Enfants Malades Hospital in Paris, France. His laboratory is a founding member of the Imagine Institute, a translational research center dedicated to improving the lives of families with rare disease. Dr. Hovnanian has completed extensive research on genetics of orphan diseases, with a focus on EB.
Anne Lucky, M.D., Scientific Advisory Board Chair, is the medical director at the Epidermolysis Bullosa Center at Cincinnati Children’s Hospital in Cincinnati, Ohio and has a private practice. Dr. Lucky provides interdisciplinary care for over 300 EB patients and consults both nationally and internationally on cases involving EB. She helped develop the EBSEQ Next Generation genetic screening test for EB in July of 2014 at Cincinnati Children’s Hospital. She attended medical school and completed her residency at Yale University School of Medicine.
Greg Barsh, M.D., Ph.D. runs the Barsh Lab at the Hudson Alpha Institute for Biotechnology in Huntsville, AL. The Barsh lab studies the genetic mechanisms of morphologic variation, and looks for new insights on basic biology and human disease. He has a M.D. and Ph.D. in pathology from the University of Washington, Seattle.
Suephy Chen M.D., M.S. is the Chair of the Department of Dermatology at Duke University School of Medicine. She attended medical school at Johns Hopkins University School of Medicine.
Christopher Sloey is a Senior Scientist at Amgen Inc. working in the department of Drug Product Technologies. He specializes in the development of protein therapeutics. He has been published multiple times and has several patents related to pharmaceutical formulations. He has a degree in Biochemistry from the University of California Los Angeles.
Amy Paller, M.D. is a Department of Dermatology Chair as well as a Director at the Northwestern University Skin Disease Research Center (SDRC) and the Director of Pediatric Dermatology Clinical Research and has led over 80 clinical trials. She is a member of the EBCRC and treats an estimated 75+ EB patients per year. She attended Medical School at Stanford University and completed her residency at Northwestern University.
Alain Hovnanian, M.D., Ph.D. is a Professor of Medical Genetics and Director of an INSERM Department at Necker Enfants Malades Hospital in Paris, France. His laboratory is a founding member of the Imagine Institute, a translational research center dedicated to improving the lives of families with rare disease. Dr. Hovnanian has completed extensive research on genetics of orphan diseases, with a focus on EB.
