Share Your Story

Become an #EBSuperhero

Fill out the form below if you're interested in sharing yours or your child's EB journey with EBRP. Our #EBSuperheroes are featured on our website and social media channels. You'll have the option to write your own story or have an EBRP team member write it for you. Submit the form below and we'll be in touch!

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Name *

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I am a *

Individual with EB Caregiver of an Individual with EB

Child's Name *

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EB Type? *

Choose One *

I want to write my own story I would like someone at EBRP to write my story

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I agree to be contacted by EBRP for this program

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Become an #EBSuperhero

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