Why #TeamEBRP?

The funds raised by #TeamEBRP go directly to research aimed at treating and curing Epidermolysis Bullosa, a rare and life-threatening genetic skin disorder that affects children from birth. There are currently no approved treatments, and life expectancy in the most severe forms is early childhood. Each team member is required to raise $3,000 for a spot in the TCS New York City Half Marathon.

As a member of #TeamEBRP, you receive:

• Entry in the NYC Half Marathon
• Training tips from our Coach
• Fundraising advice from our Development team
• EBRP branded shirt
• Team breakfast on the day before the race
• Butterfly wings handed out by our cheering section

If you're interested in running with us, please contact Abbie Levine at abbie@ebresearch.org.