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JOIN #TEAMEBRP

Thank you for your interest in joining #TeamEBRP!
​
We currently have open spots in the TCS New York City Marathon. Please email [email protected] to register.

Why #TeamEBRP?

The funds raised by #TeamEBRP go directly to research aimed at treating and curing Epidermolysis Bullosa, a rare and life-threatening genetic skin disorder that affects children from birth. There are currently no approved treatments, and life expectancy in the most severe forms is early childhood. Each team member is required to raise $3,000 for a spot in the TCS New York City Marathon.

As a member of #TeamEBRP, you receive:
  • Entry in the NYC Half Marathon
  • Training tips from our Coach
  • Fundraising advice from our Development team
  • EBRP branded shirt
  • Team breakfast on the day before the race
  • Butterfly wings handed out by our cheering section

If you're interested in running with us, please contact Abbie Levine at [email protected]. 
 

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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate