From 2020-2022, this inspiring digital event has raised incredible awareness and funds for EB, totaling over $6M and receiving +225K unique views across more than 70 countries. We are so grateful to have been joined by EB community members, doctors and researchers, and a host of celebrity friends over the past three shows, including Eddie and Jill Vedder, Billie Eilish, Will Ferrell, Tom Holland, John Legend, Selena Gomez, Keanu Reeves, Olivia Rodrigo, Emma Watson, Zendaya, and more. Through the ongoing support of the Venture Into Cures audience, donors and the patient and medical communities, we will continue to fund the most innovative and impactful global EB research until a cure is found.
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ABOUT EB RESEARCH PARTNERSHIP
EB Research Partnership (EBRP) was founded in 2010 by a group of dedicated parents along with Jill and Eddie Vedder (Pearl Jam) with one bold audacious goal: epidermolysis bullosa (EB) and in the process pioneer an innovative business and technology model to lead the way for 7,000 other rare diseases. EB is a life-threatening genetic skin disorder. Individuals with EB, often called “Butterfly Children,” lack critical proteins that bind the skin together. With skin as fragile as a butterfly’s wings, they experience constant pain, severe blisters, disfigurement, and internal and external wounds that may never heal. Today, there is no cure for EB. EB Research Partnership (EBRP) is changing that. Since 2010, EBRP has made remarkable strides, raising over $50M to fund 120+ innovative EB research projects, including funding the first-ever FDA-approved EB treatment. This approval marks a momentous milestone in their mission to cure EB by 2030 and pioneer a path for the 400M battling rare disease. |
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THE VENTURE INTO CURES LEGACY
Building off of the momentum of these 3 digital shows, Eddie Vedder played two intimate concerts in his hometown at Benaroya Hall to bring support EB Research Partnership. Ahead of the exclusive Eddie Vedder shows, EBRP brought together the brightest minds across medical research, tech, science, and more, for the inaugural Venture into Cures Summit. This inspiring day of interactive sessions and keynotes was followed by the Venture Into Cures Dinner at Chihuly Garden & Glass.
Raising over $11M+ for life-saving EB research since 2020, the Venture Into Cures franchise has become a powerful force for good in the rare disease community.
Building off of the momentum of these 3 digital shows, Eddie Vedder played two intimate concerts in his hometown at Benaroya Hall to bring support EB Research Partnership. Ahead of the exclusive Eddie Vedder shows, EBRP brought together the brightest minds across medical research, tech, science, and more, for the inaugural Venture into Cures Summit. This inspiring day of interactive sessions and keynotes was followed by the Venture Into Cures Dinner at Chihuly Garden & Glass.
Raising over $11M+ for life-saving EB research since 2020, the Venture Into Cures franchise has become a powerful force for good in the rare disease community.
